PIP Posted – The End of the World As I Know It?

clockIt’s done. It’s been sent. And the clock starts … NOW.

After being given a Lifetime Award for ‘Disability Living Allowance’ (as MS is, dur, incurable. Ask anyone!) , I have now sent off my ‘Personal Independence Payment’ forms.

My DLA payments will stop when a decision is made about PIP. I could get lucky, but so much for ‘lifetime’.

But then the Powers That Be have a curious idea of what exactly constitutes a ‘lifetime’. Perhaps they were hoping I would have popped my clogs, rather than popping the new forms in the post?

Well, I’m still here, but only just. I guess anyone would feel a little anxious after writing about the most intimate aspects of their life and sending it off to a random stranger in an unknown office? And not only that, someone who will be paid a bonus for not allowing me the benefit?

I have had to write about stuff no one else knows. And I had hoped it would stay that way. Not even my trusted neurologist or MS nurse knows the half of it. If I had another half, they wouldn’t know even a quarter of it.

So, there’s me, laid bare. And now I wait, and make contingency plans. If I am turned down, I have the right to appeal (the whole process is quite complicated and I’ll have to read up on it over Christmas), but basically, any payments will stop.

And therein lies the problem. No matter what way I look at it, no one can survive on a deficit of £75 a month. Even though I still work. It’s beyond reason. Sure, I can pay my rent, the council tax (a punishing £96 a month, even with a single person’s discount), utilities and phone. That’s even before food.

So, there’s me, laid bare. I am writing about this to highlight the stark reality of many of us facing such drastic cuts to our income. Even before this change in my circumstances, I was barely scraping the poverty line. And still working.

I am crossing everything for a miracle, that perhaps my lifetime award will remain a lifetime award. In the meantime, I’ve been joking with my friend that I could live in a camper van on his driveway.

When I say joking, I mean, that sad, melancholy form of a joke, when actually, it means something much more serious.

4 thoughts on “PIP Posted – The End of the World As I Know It?

  1. Donna says:

    I am so sorry that the DWP have sucked the joy out of you too. My daughter and I have been living on £62 a week, with no housing benefit as they found a loophole so they didn’t have to pay it. Every day is a struggle to resist the urge to off myself, which I am sure is their intention. I just pray for a revolution xxx

    • stumbling in flats says:

      I am so sorry to hear this. As it is, money is extremely tight. Especially when The Teenager comes home.
      I dread to think what the future holds. x

  2. MikesNotDead says:

    I’m sorry you are going through this.
    It’s a horrible cruel process. I have MND – incurable, will only get worse and has one inevitable outcome…..but I get reassessed for PIP every couple of years. They seem to think somehow I’ll improve….
    My first assessment was actually quite a pleasant experience with a sympathetic nurse. The second made me feel like I was being interrogated by the secret police. I was very ill afterwards. It lasted 2 hours and was incredibly humiliating. The person who interviewed me showed no humanity and seemed to have no perception that she was talking to a fellow human. Just monotonous question after question and tapping on her laptop…..at the end of it I had to do exercises to show my (lack of) range of movement. I felt like crying. Something is very, very wrong with a system that allows the ill to be treated so badly.

    • stumbling in flats says:

      I can’t believe this! Such an awful experience for you.
      I’m dreading the face to face assessment, as I’ve heard such horrible reports about how demunanising it is, like you say.
      Like MS, MND certainly should not be reassessed at all – it’s shocking. X

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