Tag Archives: MS nurse

At First I Was Afraid, I Was Petrified…

one tough cookieOn Wednesday, I had an appointment with my MS nurse to discuss how the latest round of Campath had gone.

I had a good chat, did a blood test, made a new appointment for next February and left, happy and relaxed. I’d reached a significant milestone.

This was probably the first MS appointment where the staff haven’t had to virtually prise my fingers from the reception desk and tell me to go home, everything will be fine. I always had just one more question, one more point to raise. I could quite happily have set up camp in the waiting room.

At my very first appointment with the neurologist, I left confused and with a head full of unfamiliar medical terminology, stunned that something so potentially huge could be on the horizon. I wanted to stay in that room forever, boring him to tears as I struggled to make sense of what he was telling me. At appointments with the MS nurses, there was a sense of comfort and safety as I sat in their room, emotions never far from the surface.

Having been thrust into an unfamiliar environment, I very quickly didn’t want to leave. The MS team had an answer to everything. If I could have taken an MS nurse home, I would have. The whole MS diagnostic process probably doesn’t help. Who knew it can take so long? Who, outside of the MS world has an idea what the McDonald criteria is, what oligoclonal bands are?

Not only that, there is the sense that your own world will never be the same. How do you tell your family? How can you cope once you start being bullied at work due to your diagnosis? How bad was my health going to get? The MS team helped me through it all. I was given access to a vast array of support, equipping me to become my own expert of my MS.

It’s been a long two years. When I look back to those frightening early days, I marvel at how far I have come. I’m still me, I just happen to have MS, and I now know exactly how to live with it.

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Haematoma Blues (And Purples, And Reds…)

haematoma bluesMy magnificent bruising has been reclassified as a haematoma, which probably explains why I’m still hobbling around almost two weeks since my accident.

I was lucky enough to see one of our fabulous MS nurses at the Work and MS conference on Saturday and during a coffee break, I rolled my jeans down in the loos to show her the injury.

She carefully examined it and suggested I take myself off to Accident and Emergency to have it scanned in case there was an underlying fracture.

To cut a long story short, my mum took me that evening and the good news is, it’s just a haematoma, not a fracture. The bad news is, the only thing I can do is wait for the swelling to go down. It’s not going anywhere fast and neither am I. The pace of my life wasn’t particularly speedy before (take a bow, MS fatigue and foot drop) but has now slowed to a virtual stop.

I’ve been told to keep my leg elevated as much as possible, so needing no excuse to lie down and fill my brain with trashy tv when I should be slaving over an essay, my sofa is now almost permanently in use, much to the chagrin of the cat.

The Teenager marvels at my ‘cushy’ life and prods the lump on my leg in wonder. He’s very much enjoying visiting friends for tea after school and has perfected his sad face when talking to their parents, ‘oh, my mum’s dreadfully ill, she’s got this massive  thing on her leg, the size of a rugby ball, honestly, she can barely speak, it’s that bad’ before gratefully accepting yet another chocolate roll or can of Coke.

I’m sure I’ll be back on my feet soon enough and will no doubt look back wistfully on my weeks at home when I go back to work.  But I do miss the banter and bacon rolls and even my nickname, ‘Half-Shift’…

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