Pre-MS, I could never imagine a day I did not scoop up my kid and take him out.
The very idea of being stuck at home was absolute anathema. I collected cut-outs from newspapers, leaflets and magazines with a zealous streak, not wanting him to miss out on anything.
Post-MS, it was a very different scenario; devoted rugby mums would collect him and bring him back brimming with mud, injuries and victories. My friend attended parents evenings and took copious notes on my behalf, which she then relayed to back to me.
Those were dark days.
When you can’t take your Teenager to the beach as you know you’ll be weak and miserable, with a massive dollop of heat intolerance is distressing beyond belief.
I waved him off, a smile on my face, but inside I was crumbling.
Eight years down the line since my diagnosis, and three courses of Alemtuzumab later, I am in an ok-ish place.
And now we have this virus, which we may, as people with MS, be a little more susceptible to. I say this gently, as we are not yet aware of the whole picture. What I do know is that to have an MRI, which I do yearly, may show more lesions, and this could be the year for another course of Alemtuzumab.
If this is the case, I cannot see it happening for me, as it would reduce my immunity to near zero. And that is ok. I’m still working, still studying, I’ll get through this blip.
But the one thing us MSers are brilliant at is self-isolating, after all, most of us have been doing it for years.
So, let’s turn the tables and give others the benefit of our experience?
- Home shopping
- Friends leave cake outside your door
- Stay in touch, whatever way you can
- Learn something new
I’m actually amazed that our Government hasn’t yet called upon our superior experience in this matter, but we live and learn?