This post is a very big thank you to everyone.
I’ve been going through my own personal relapse hell these last few months and it’s thanks to you guys for keeping me sane; here and on Twitter.
Meeting with my MS nurse yesterday just showed me how important it is to be listened to, both by the MS professionals and my MS peers.
You haven’t shirked from my odd symptoms, you’ve sympathised with my sofa-bound enforcement. You’ve cheered me up and empathised when times were hard.
In a way, I’ve made sense of this relapse thanks to you. Each post I’ve written during this time has given me the most insightful comments, a lot of which I took to yesterday’s appointment.
MS for me is isolating and lonely. Get the violins out, but there is no Significant Other. No one to pick up the pieces, to cook dinner or flick a duster around. So the camaraderie I gain from you means the absolute world to me.
The knowledge that no one has to go through a relapse alone is empowering and comforting.
I hope you all know just how much this means to me.
Thank you.
Hi – I meant to reply to your last post and just didn’t get round to it..so sorry for that! I’ve just turned the corner on a bad relapse with new symptoms in my left hand which previously had never been affected so typing was hard even on a lap top. Steroids sorted it out pretty rapidly but as you know they take their toll and for the 5 days I was taking them I felt pretty crap but not too bad now. I don’t know what it’s like to deal with all of this alone but unfortunately may do shortly as my dear support and right arm in every sense has been diagnosed with a terminal brain tumour and his life expectancy is very limited. It may have been the stress of all this that brought about the relapse but hey MS plays by its own rules so that might have nothing to do with it. The main reason I want to post this is that although I was near to suicidal despair with what’s been going on in my life – there is also a tiny, tiny, tiny bit of me that thinks I will get through this and I think that’s the same for all of us. We are so used to adapting and making the best of things that awful things become manageable.
I gave up work due to MS. I know you didn’t and I admire you so much for that. I know you joke a lot about work but I’m also sure it’s difficult and not all the fun time you tell us about. You manage it as well as writing a blog, doing a Masters as well as bringing up a child single handed…and doing a good job of that too.
Whatever this new scan shows up I really believe you will deal with it and it won’t diminish your spirit. Of course it’s scary…no way round that, but think of all you’ve done already in your life.
They say ‘old age doesn’t come alone’ but MS doesn’t come alone either…warmest wishes x
I’m so, so sorry to hear about your partner’s diagnosis and I wish you both every ounce of strength through this difficult time.
And yes, you will get through this; you seem an incredibly strong person, despite everything you’re experiencing right now. What you are going through is almost unimaginable but, like you say, there is always that little part of us that knows we will survive.
As for work, after being sacked from my last job, I can only thank my lucky stars that I helped my good friend start up his business over ten years ago. So when I needed a job, he was there.
Please take care of yourself, as much as you can right now.
X
Your post brought a lump to my throat, it really did. I’m quite sure that you underestimate the power of your blog and the support it offers to all of us that read it xxx So I’m sending those thanks right back at you xx
Such a lovely comment to receive, thank you so much!!
I can’t even begin to put in to words how much support I have had from everyone over the last four years, through the blog, and it’s really cheering to hear that it gives support to others too 🙂
x
You get back what you give. I think you give a lot to other MS’ers? ….pity we couldn’t all hook up for a glass/bottle? of wine lol and compare notes x
A most excellent point!! We’d surely have the best evening ever!
x
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And we’d all look squiffy, so no one could laugh at us 🙂
x
Don’t care who laughs… one of the advantages of turning 50 ???
Brilliant!!
x
Sending you some Reiki and a big hug. x
Thank you! Reiki and hugs are always welcome 🙂
x