MS Blogs

If you write a blog about MS, let me know and I’ll put the link up here, or if you fancy trying your hand at writing a guest blog post for this site, have a look here and get in touch…

 

Andy Reynard’s blog, Balls to MS, tackles his MS from various offbeat angles, always looking for the laughs. If he’s honest, though, he started it mainly to promote his book of the same name that is available on Amazon in both paperback and as an e-book.

 

The Patient RPh (Pharmacist) is a blog written by a pharmacist as she navigates this new world of MS with her “pharmacist brain” and her “patient brain” (spoiler alert: sometimes they are at odds!) with the hope that she can inspire others to navigate their chronic illness with grace, hope, and a little humor.

 

 

Miranda’s MS Blog is written by an MS Nurse with a holistic perspective, who occasionally gets moved to burst out with some interesting stuff she’s found out about and hopes is useful.

 

 

MS and Mimosas is a new blog by Heather, who says, ‘I am 23 years old, working full-time, and just trying to figure out how to be an adult. Oh yeah, and how to be an adult with a chronic illness’.

 

 

One Man and his Catheters is a great blog by Mark. As you can guess from the title, he writes an honest and open account of life with advanced Multiple Sclerosis. He’s still smiling and laughing through it all – most of the time. When his wife lets him, he jumps out of planes and plays Wheelchair Rugby (not at the same time!). He’s passionate about raising awareness of MS and disability as a whole and works as Head of Comms for Shift-ms.

 

I’m a rich tea in a hob nob world is a new blog by Sarah, who says, ‘MS Survivor, Inappropriate Mother, and a Daily Quest for Reasons to Laugh and Smile.
I’m no literary genius, but as a form of therapy & to stop me going stark raving bonkers, I’ve decided to dip my toes, ever so gently into literary waters & write a blog. So here goes… It’s not going to set the world on fire and will, more often than not be grammatically incorrect and a tad fruity but, it’s good for mind, soul & sanity!’

scrambled

Mildly Scrambled is a mix tape of music, multiple sclerosis and the occasional gin. Thirteen years in, I hope my experiences can be hopeful, helpful and occasionally amusing.

 

 

sue‘Within the space of just over a year, my life was entirely transformed: my book and now blog follows my journey through that challenging time. It is the story of coming to terms with our older son’s autism as well as trying to deal with my own diagnosis of Multiple Sclerosis, except I never call it that- MS  sounds a lot less alarming.  I tend to go to great lengths to hide my illness; don’t want the fuss, hence the title Laugh or You’ll Cry.

11807148_10153584605074052_1365375372424628991_o(1)An Aussie now living in the UK. I started blogging my journey from start to present-day (and a little bit in between), to help my family and friends (esp in Australia) understand that it’s no easy ride, but we are all doing OK!. Read it here.

 

 

Edith

 

Think In Decimals charts the life of a blogger in her 20’s trying to balance living, working, and having MS since the age of 16.

 

ladywithmsLadywithMS is a blog by a 30-something Australian with MS – well worth checking out!

 

 

Kerri NewellClimbing Downhill was started by Kerri to map her experiences with MS, mobility equipment and house remodeling but now covers so much more. Have a look!

 

 

Check out Steve’s blog It’s a Shit Business – an online diary-cum-therapy-hole for a young(ish) man chronicling his life with multiple sclerosis.

 

 

Sian writes a great blog about undergoing Alemtuzumab (Campath) treatment in a bid to halt/delay this vile disease – Alemtuzumab, MS and Me.

 

 

Nicole Lemelle writes My New Normals. She is a writer, activist and a person living with MS. Her website generates conversation, promotes advocacy, highlights resources and inspires hope.

 

 

aid4disabled-logo

Not strictly a blog, Aid4disabled is a great website, offering valuable advice and information for people living with MS.

 

Duncan, a father of three boys, writes an inspiring blog about his fundraising for  MS research. Read about his preparation and training for his Sculling Challenge.

 

40 thoughts on “MS Blogs

  1. duncan says:

    I have ms father of 3 boys recently retired, 41 yrs old, doing what I can to raise cash for research for cure.
    We will be launching the 10 in10 2013 in January, blog will cover training ,preparation for this
    Check it out
    Cheers
    Dunc

  2. stumbling in flats says:

    Hi Duncan!

    Sounds interesting – let me know the blog address and I will add it to the list.
    x

  3. duncan booth says:

    Dunc10in10blogspot.co.uk

  4. stumbling in flats says:

    Sorry Duncan,
    My mistake (cog fog) – will add it today. What would you like me to use as your little picture? x

  5. duncan booth says:

    i cant paste a pic in this box, any pic from my blog will do. can you do that? i am a bit computer challenged sorry
    dunc

  6. stumbling in flats says:

    No problem – will sort it out! x

  7. stumbling in flats says:

    Duncan,
    All done – let me know if it’s ok. x

  8. Estizer A. Smith says:

    Well I think my blog is great 🙂 I’d love for it to be on your list. http://www.msopenmic.wordpress.com

  9. Patrick says:

    Could you mention my website http://www.aid4disabled.com, I have SPMS. OK its not a true blog but I have built this up since Feb 2012 and it has stopped me going bonkers.

    I want the website to help disabled people. If the readers become more independent, have a better quality of life and throw daytime TV into room 101 then I have done something constructive.

  10. Kerri says:

    I would appreciate being added to your list.

  11. Jalon Ekholm says:

    Hi there! I just ‘stumbled’ upon your blog and it is certainly very entertaining and informative. I love your blog about MSPreneurs! I shared this on my MS Warrior facebook page and have been contacted about how well liked it is. I have a blog as well that I would love for you to check out. It is http://www.mswarrior.net

    Thank you for sharing a little humor and candidness with us all!

    • stumbling in flats says:

      Hi!
      Thank you for your lovely comments and for sharing the MSpreneur post!
      Your blog is fab, very inspiring and your MS story is spookily similar to my own. The hospital also thought I was having a stroke as my speech deteriorated so badly.
      Hopefully I’m now picking up the pieces and trying to bring a little bit of humour into a dark situation!
      x

  12. Patricia says:

    HI!

    Thanks for your inspiring blog. I started my blog today. Can you please add me? Im working on turning it into a fundraiser as well. I can add your blog to mine too, let me know if and how you like to be published on my site. Keep up the good work! Blessings

  13. Willeke says:

    Hi there!

    Would it please be possible to add my blog to your list here? I was diagnosed in 2005, and have severe fatigue and trigeminal neuralgia as main symptoms.

    My blog was a finalist in the 2014 Ireland Blog Awards and was shortlisted in 2013.

    I’ve added your blog to my 10 Essential Reads as it’s a fab one and just what I love in MS blogs.

    Take care,
    Willeke (Billie)

    • stumbling in flats says:

      Hello,
      Of course and thank you for the compliment *blushes*! And congrats for the Blog Awards 🙂
      Just send me an idea of a line of two, what you would like to say about your blog? And also the picture you want to use? Email me on: barbarastensland@hotmail.com
      X

  14. Hi – great blog! I am a newest newby both to MS and blogging. But I am finding it useful to write it down and get everything off my chest after the worst 12 mths of my life. Please could I publish the link on your site? It is emmalisa3.com.
    Thanks much
    Emma

    • stumbling in flats says:

      Hi there! Thank you 🙂
      So glad you’re blogging. It’s the best therapy ever!
      I’ll add you to my blogging list?
      X

  15. Thanks so much. Yes please add me to your blog list on the address above.
    Emma

  16. My personal blog is at http://insidemystory.com but the majority of my writing is published via http://multiplesclerosis.net/author/laura. Keep up the good work of encouraging others to write – it is great therapy and best of all, it is free! best, Laura

  17. Tanya says:

    Hey there my nsme is Tanya, I live in Sydney Australia and am a Primary Progressive Ms’er
    I have a blog titled 365 Day Somethings Https:// 365daysomethings.wordpress.com… I write about the many aspects of me and my daily writings and journeys… here is my write up my introducing myself as PPMS warriors… I have given name to my PPMS (I call him “My Story” – Ms for short).

    I would love to listed on your Site and would be more than happy yo return the favor.

    Many Thanks for developing a great resource snd insight to your thoughts

    • stumbling in flats says:

      Hi Tanya!

      Lovely to hear from you and more than happy to add you to my blog list.
      Would you be able to send through a small photo and a couple of lines about your blog? My email is: barbarastensland@hotmail.com 🙂
      I look forward to hearing from you.
      Bx

  18. Adding you to my blog list RIGHT NOW.

  19. Heather says:

    I’ve have loved your blog since being diagnosed and I just started my own! It has been exactly a year since my diagnosis. To sum it up: “I am 23 years old, working full-time, and just trying to figure out how to be an adult. Oh yeah, and how to be an adult with a chronic illness.” I would be honored to be added to this great list!

    URL: msandmimosas.wordpress.com

  20. Jacqueline Haller says:

    After 20 years of MS treated from 2000 to 2006 with Rebif(efficient to that year) and then Avonex(not efficient to calm down my lesions’ number increase) i found this website ww w. kykuyuhealthclinic. com just 3 months ago, and their current natural health tech to help curb/manage it. It has made a tremendous difference for me I had improved walking balance, muscle strength and improved vision, always thankful for nature that helps in managing these terrible diseases.

  21. juli says:

    I was diagnosed with MS in August of this year–the icing on the cake of what has been 2020. I viewed this a set back and we would work through this together. My husband was very supportive, but has taken on the role of ‘caregiver’ more than spouse. In my case, this has not been necessary but has erected an immovable barrier between us as he turns more and more to coworkers for emotional support. If I try to show him emotional support for what he has lost in my diagnosis, he pushes me away and denies there is a problem. In the meantime, he talks to his coworkers about his feelings. I am on LTD now, I driving again and can look after myself. I am not in need of a nurse or caregiver. I can walk without aid, I am diligent about exercising, diet, and meditation, and brain building games to keep myself as sharp as I can be after the relapse. But I am feeling lost and alone as my husband turns away from me and all support I offer to engage instead on a deeper level with people at work.

    • stumbling in flats says:

      I’m so sorry to hear this. Is there any way you can try and bring this up with him? It must be so hard for both of you right now, alongside everything else happening in the world. X

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