It’s a funny old life with multiple sclerosis and I write about whatever’s on my mind, no matter how trivial or random, and not always about MS. After starting my blog in 2012, it’s now read in over 100 countries, so a huge thank-you to everyone.
I live in the UK with my son, The Teenager, and was diagnosed with MS in May 2012. I had my first course of Alemtuzumab (Campath/Lemtrada) in the summer of 2012 and had my second in 2013. In Autumn 2015, I had a third course.
I was sacked from my last job for having MS – I won the tribunal – and I’m now working for my friend’s company and enjoying every minute as a building site project manager, muddy boots and all.
I’m chuffed to say that I was a finalist for the MS Society’s MS Digital Media of the Year 2013 award and again in 2016. Third time lucky? Possibly – I’ve been nominated as MS Society Campaigner of the Year 2017 (fingers, legs and toes crossed) – the ceremony takes place in May.
In the meantime, I recently completed an MA in Creative Writing at Cardiff Metropolitan University and was awarded a Distinction for my dissertation, a contemporary re-working of ‘An Inspector Calls’, as a novella set in the social-care sector.
My book, ‘Stumbling In Flats’ was short-listed for The International Rubery Book Award 2015.
In Spring 2016, I was asked to be the MS advisor for the short film, ‘Spoon Fed’, starring Lesley Sharp (Scott and Bailey, The Full Monty) and Joseph Mawle (Game of Thrones), and I also had a walk-on part, an interesting, nerve-wracking and illuminating experience.
I’m a member of the MS Society Cymru Wales Council and also take part in academic research for several organisations as a patient representative. I write for numerous websites, including The World Vs. MS (as a Committee member), the UK MS Society and many others and have been interviewed by BBC Wales on the topic of disability discrimination.
I like croissants (especially almond), newspapers, a good discussion over a cheap bottle of wine and expensive candles, gift shops in museums, the London underground and sparkly flat shoes. The Teenager enjoys winding me up, buying American Skittles and Nerds from the internet, his phone,
pizzas protein shakes (things have changed since 2012) and Hollister t-shirts.