Tag Archives: cancer

The People You Love …

ghostsThe Teenager went to Manchester at the weekend to visit a close relative who is severely ill with Parkinson’s and now living in a nursing home.

I picked him up from the train station yesterday evening and could clearly see the slump in his shoulders, his troubled face.

On the drive home, we chatted about this and that but he was mostly occupied with his phone and glugging back the drink I had brought with me.

Until, ‘Mum? Can I ask you something?’

‘Of course!’

‘Will, um, do you think, well, you could ever get like that? You know, with MS?’

I took a deep breath. ‘I really don’t think so, sweets. Look at the treatment I’ve had! It was hard this weekend?’

‘Uh huh. It was really nice to see him, but really sad. I’m scared you’ll be like that when I’m older.’

‘C’mon kiddo, you know how tough I am. Tough as a toffee!’

‘So was he.’

‘Oh, I know sweets. A really strong person and what happened to him is just awful. But he’s been ill a really long time.’

‘I’d look after you, you know.’

‘That’s so lovely of you, thank you. But you know what the most important thing is? That you get on with your life. Everything is opening up for you. I’m doing just fine, sweets. I’m working, I’ve got Uni, everything’s great. You know I don’t need to ask you for help with anything. I like looking after you.’

‘Yeah, I know, but sometimes I wish you would ask me. I feel really helpless when you’re tired or your legs are sore. I’d like to make you a cup of coffee or a glass of squash. Or something.’

My heart broke into a thousand pieces.

‘Ok, let’s make a deal. Next time I’m really, really tired and have to go to sleep in the afternoon, you can wake me up after an hour with a cup of coffee? That would help me a lot.’

‘Deal.’

After growing up with ill parents, I’ve always been determined never to turn my son into some sort of carer. The thought horrifies me. But have I gone too far the other way? Am I somehow blocking him out?

And not only this fear, but also a dear friend of his, one of his close group of friends from school, passed away from cancer on Saturday. He was 17. The Teenager is struggling with appalling grief from both ends of the spectrum, at the beginning of life, and towards the end.

It is even more vital now, that I support him. But how best to do this when his thoughts are clouded by my MS?

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Every Moment Counts

blue sky thinkingCancer Research UK has launched Every Moment Counts, ‘a platform where people who have been touched by cancer can upload and share precious moments, both everyday and extraordinary’.

The idea behind it is that when you’ve experienced cancer, these moments make you suddenly hyper-aware of the here and now and of how wonderful it is to be alive. It’s sad but so often true that sometimes it takes a serious illness to remind us of this.

People like me who live with MS may not face a life-threatening diagnosis that cancer can bring, but we do have to adjust to a lifelong, degenerative and incurable illness. Life as we know it will never be the same again.

I’ve spoken to a lot of people with MS over the last two years, and we all feel that MS has made life more precious. The mundane can seem magical, we value our friends and family much more and we just seem to appreciate life in a new, more vivid way.

MS makes us stop in our tracks and take stock. What once seemed important no longer is and vice versa. The old rule book is torn up and thrown away. Although MS can appear to condemn us to a life of misery and uncertainty, it can also liberate us from old routines and destructive habits, both mentally and physically. After the obliteration of diagnosis, we can rebuild our lives in a way we choose, where we can savour precious moments so much more.

Someone told me recently that one day they just sat and watched the clouds, something she hadn’t done since she was a child. As for me, MS has made me see my life through new eyes. I’ve weathered the storm and come out the other side.

I sometimes feel like a child again, taking pleasure in the most simple things. Meeting an old friend for coffee and having enough energy to hold a conversation. A hand-written letter arriving with the post. Baking a tray of chocolate brownies with The Teenager.

Every Moment Counts is a brilliant idea, for all of us.

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