Tag Archives: trolls

I Get Knocked Down. But I Get Up Again …

GodfatherWell, the truly troll-y emails I received knocked me sideways and then way down.

Normally, I would read, fume, delete and ignore, but this year has been fraught. Not the best timing.

The very medium which brought me to the trolls attention has once again become my saviour – my blog. Your comments and emails have been incredible; I’ve read them over and over again and they really have built me back up. I honestly can’t thank you all enough.

I don’t know where I would be without my supportive MS family.

I decided to write an open reply the day after The Teenager went on holiday with his dad, to give me time to gather my thoughts, have a few sniffles and many pangs of massive self-doubt, then be ready for when he gets back. Which is today. Or so I thought.

I sent him a text last night wishing him a fab flight and had organised a day off work to pick him up. The fridge is stocked with high-protein foods and the shelves are bulging with Special K.

He texted back, ‘Yeah, ta. Flight’s tomorrow?????’

Yup, MS brain at work again. So I have another full day in a clean and tidy house, with no wet towels hanging up on the floor, no sink full of bowls, no loud music. Bliss.

A bit more time to think before I put the whole trolling episode behind me. It’s so easy to hide behind a computer screen and spew bile. It’s also easy to click ‘send’, without giving any thought to the damage inflicted. My blog is public – my name is on the photo at the top of the blog. The only time I remained anonymous was when I was going through a court case for unfair dismissal, on the advice of my lawyer. As soon as the case was settled, I was out there.

I’m real and it’s been hard to write some of the posts over the last four years, but I think it’s important to show what real life can be like with an illness like MS. If I had written anonymously, I doubt I would have been more honest, and I wouldn’t feel a connection with you guys, because you wouldn’t know the real me. ‘Here’s me looking fat with a couple of TV and film stars!’ ‘Here’s me, attempting to look intelligent and intriguing on Twitter!’

A funny thing happened to me today. I was browsing in a charity shop (holding a size 18 top, gah), when a man walked up to me and said, ‘Hello, I know you!’. Long story short, I had bought a canvas picture of The Godfather for The Teenager from him through Gumtree a good year or so ago and we had got chatting on his doorstep. I mentioned my book and he later bought it.

He said to me, ‘You know, I would never normally have read your book, but after meeting you I did. It’s totally changed my perception of MS. When’s the follow-up?’

If us peeps with MS can bring attention to MS, live as well as we can with MS and offer a hand-up to those of us who are struggling, our MS family is stronger together.

So, that’s MS and me – 1, Trolls – 0. Or, as The Godfather would say, ‘Never hate your enemies. It affects your judgment.’

p.s. I just have to include a comment on my last post, by my Aunt Karin, my dad’s sister:

As your aunt and your late father’s sister I must say how proud I am of you. You are a joy and an inspiration to so many. Never let your detractors dampen your spirit. They should “Stumble in Your Flats for a Day”.
Uncle Ronnie and I love you so very much.

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A Reply To The Critics (Trolls)

trollOne of the downsides to going ‘public’ with my MS blog are the trolls.

I’ve always been reluctant to use my real name; not for some precious reason but simply because my mum has the same name and there’s not many of us Stenslands in the UK. It’s a Norwegian surname (thanks, Dad!).

The major criticism I’ve had is that my blog is facile and ridiculous.

Ok. This October, my blog will be three years old. I don’t know many blogs about MS that have lasted that long. My blog charts my ‘story’ from being sacked for having MS, through diagnosis, through finding a new job and all the emotional ups and downs an MS diagnosis brings.

I have also always refused adverts on my site, despite numerous requests. Fair play to other people who do that, but it’s not for me. I pay my own hosting fees (not a small amount) and I cover all my costs. My blog is pure and simple. And I hope my message reaches those who can take comfort from my own story.

Trolls are nothing new. If they had half a brain they could even be intelligent. I had a particularly nasty one on Twitter a while back. She spewed bile about me for some reason. What she could not have known, and probably wouldn’t have cared about, is that she aimed her attack during a particularly difficult period for me. Well. I hope she’s satisfied.

Anyway, trolls won’t stop me blogging the truth about MS. It’s not pretty, it’s often funny, it’s crap and it’s hysterical.

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