Category Archives: Daily Life

Stumbling In Style…

MS Trust Shoes 2 MS Trust ShoesThese are quite possibly the best, most stylish, most beautiful pair of flats I have ever owned – the lovely and talented Helena at MS Trust customized them for me after I hankered after a gorgeous pair of high heels she created.

They’re currently living on my desk so I can admire them and I’m just waiting for the perfect opportunity to launch them into society.

The shoes led on to a Twitter discussion about what else we could customize – I suggested a blue hard hat for work? Tagline – ‘When your world crumbles around you, there’s always the MS Trust…’

The Builder thinks that’s a brilliant idea, as it could possibly mean I will do more work, rather than eating bacon butties, texting and pointing out that his measurements are wrong.

Anyway, I absolutely adore my new shoes – they are a work of art. I’m tempted to frame them, but that would be a waste. They need to be seen! So if anyone would like to take me out to show them off, just let me know…

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It’s Beginning To Look A Lot Like Christmas…

The shops are full of chocolate and cakes, magazines are stuffed with recipes, we’ve got two bank holidays and the kids are bouncing off the walls with excitement and e-numbers. Easter is rapidly turning into Christmas Mark II.

I’m not complaining. I love Easter. So much so that I put up my Easter branches (in lieu of a tree) weeks and weeks ago. I’m looking forward to lazing on my sofa watching ‘Gone With The Wind’ for the 27th time, pausing the telly only to hunt out more chocolate.

(Handy hint for MSers – don’t bother buying those teeny-weeny chocolate eggs wrapped in foil. If your hands are dodgy, like mine, the teeth-gnashing frustration really isn’t worth the effort. Just buy several large ones instead).

Anyway, The Teenager is away for a week, so it’s just me and the cat rattling around the house. The laundry basket is empty, the fridge is fully-stocked and I am going to use this time as a period of quiet reflection. I have decided to re-hash my New Year’s resolutions, giving myself another chance to fail at unlocking my true potential.

My resolutions, in no particular order, are: eat less, exercise more, try new things and learn how to make a decent Hollandaise sauce. My emotional resolution is to stop being so hard on myself. I get frustrated and angry when MS fatigue drives me to the sofa yet again, when I bale out on friends or have to go to bed early. I still raise my son, study, work and run a house, so maybe I should cut myself some slack.

It’s strange, but sometimes I forget I have MS. I just think, oh, that’s the feet buzzing again or here comes the fatigue and whoops, nearly fell over there. It’s become such a part of my life and it brings me up with a sharp shock when I think, ‘oh yeah, I’ve got multiple sclerosis.’

So this Easter, with The Teenager away, I am going to indulge myself. I will be meeting up with friends (fingers crossed), reading trashy novels and magazines, trying out new recipes and chilling. I am going to be kind to myself, something I have really neglected to do recently.

Happy Easter!

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Make Mine A Large One

With pleasure comes pain. The bacon butties and biscuits I have happily munched on since working for the builder have wreaked havoc on my figure, my muffin top morphing from a skinny raspberry into a full-blown, full-fat double chocolate chip with whipped cream on the side.

I had to face the awful reality that it was time for one of the most humiliating and sad events in any woman’s life.

Nope, I wasn’t going to join a slimming club, I was going jeans shopping. Guaranteed to strike fear into the heart, I was going to be very brave and thank my lucky stars that communal changing-rooms had been outlawed in the 1990’s, along with shoulder pads, dodgy perms and ra-ra skirts.

And so I found myself wandering around shops where the sales assistants were young, hip and terrifyingly thin, showcasing the latest hot-off-the press fashion looks. I furtively flicked through the rails, depressingly starting at the back where the larger sizes huddled in shame. A quick glance round and I shoved a couple of pairs over my arm, cleverly tucking the size labels inwards.

Off to the changing room where a tiny sylph-like creature smirked as she slowly counted my items, handed me a plastic disc and waved me off to a cubicle towards the back. Half an hour later, I was red-faced, exhausted and depressed. Whoever said skinny jeans suit everyone clearly lied.

My MS balance (or lack of it) turned trying on five pairs of jeans into a farce. One leg in and I was pinballing off the sides of the cubicle. Two legs in and I was jumping around like a demented person on a pogo-stick.

When I could finally stand still, I was lucky enough to see my sorry figure from numerous angles, many of which I had never seen before, thanks to the eight different mirrors. I really do need to pick up that kettlebell for longer than three minutes at a time.

I found a pair I could live with, handed it over at the cash desk, not fooling the girl at all when I announced, ‘Oh, I’m sure my friend will love these!’ I left the store, turned a sharp right and headed for sanctuary. A coffee shop, where I ordered a large latte with an extra shot and the biggest muffin I could find…

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Put Yourself In My Place, Why Don’t You…?

I’ve been working from home for the builder most of this week and drive to the shops each morning. A new primary school has opened across from the car park and every day, a procession of parents blithely park in disabled spaces and walk their children round the corner, the disabled parking saving little Rosie and Johnnie a couple of metres of walking, even though at that time in the morning, there are plenty of other spaces.

I have a blue badge. MS is a variable condition for most people, myself included. I don’t always use the badge, but when I need to, it’s a lifeline. The days when foot-drop, nerve pain or muscle spasms make walking difficult and painful, or my balance is shot to pieces, knowing I have a few more parking options makes it worth leaving the safety of my house, even for a short time.

The flip-side to this is that when I do park in a disabled space, I am met with tuts, hostility and anger from others, whether they have a blue badge or not. They closely examine me getting out my car, whisper to each other, glare at me and sigh loudly, shaking their heads.

So far, I haven’t been openly confronted, and I’m relishing the opportunity, building up the courage to go over to them and challenge their attitude and press a leaflet about MS into their hands before I stumble off.

Disabled spaces are treated with as much scorn and disregard as parent and baby spaces – how many of us have seen a car drive up to designated parent parking and a couple of teenagers jump out? Or worse, no kids at all. So rather than silently fume, I am going to take action.

The point is not that these parents only use the spaces for ten minutes, it is that they use them at all. Disabled people are generally treated as second class people at the best of times, so perhaps it is understandable that people wilfully abuse one of our few concessions without a thought.

Is this the only time they put themselves in our place?

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Nice Face, Shame About the Makeup

bad make upI sat down to write my list of things I must do, hugely inspired by comments from the last blog post, completely forgetting that I had actually attempted something for the first time ever last week.

Don’t laugh. I went for a make-up consultation. Yes, I entered the Glossy Hall of Terror and lived to tell the tale, albeit with a slightly bruised ego. I had done my research, knew which counter I wanted and marched with purpose towards it, then stumbled past the perfume-sprayers, the ladies who lunch and the gaggle of make-up ladies, in whose über-manicured hands my fate now rested.

At the counter, I nonchalantly pretended to examine the nail varnish until an assistant (Hi! I’m Carly!) with thickly-troweled-on make-up, surprised brows and a blowfish smile wobbled over to me in her 6 inch heels (jealous, much?). Out came my sorry tale, the heat intolerance, the cold intolerance, my poor, ravaged complexion, my battered soul. She nodded sympathetically, head cocked to one side as I pretty much flung myself at her feet, begging for help.

‘Now, do you want the ‘no-make up, make up look, just like I’m wearing?’

‘Oh, um’ (a quick glance at her face confirming my worst suspicions) ‘Well, I was hoping to , er…..’

‘Don’t you worry pet, my auntie had cancer, awful it was, so I know just what you’re looking for. You want something to help you fight back, face the world, feel strong and feminine again!’

‘Well, honestly, I’m just looking to, um, freshen things up a little.’

‘Super duper. Now, here’s our colours, our brushes, our pots, our testers, our dvd, our loyalty card, our massively overpriced eye cream. And what we do, what’s really special, is that I will call you next week, see how you’re getting on with your new make up. Isn’t that lovely? A nice little phone call. Should cheer you right up!’

Desperate to leave, I selected the make-up I wanted, chucked in a moisturiser and a primer and wangled some microscopic free samples, then diligently wrote down my telephone number and fled.

It was nice and girly to do something different, and some compensation for having such a limited range of shoes to choose from. Sadly, I still haven’t got the hang of blusher quite yet – less English Rose and more Spanish Beach Holiday Mahogany. And I’m still waiting for that special phone call from Carly…

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