I had an email a couple of weeks ago – would I be interested in speaking to the actors of a new film about MS? The producer was eager to portray an accurate and honest account of the realities of life with MS.
I read further – the actors were Lesley Sharp (from Scott & Bailey, my favourite) and Joseph Mawle who had been in Game of Thrones.
Erm, yes please?
So last Tuesday I found myself in a rehearsal room in London, chatting away to them and the script writer. They asked me an incredible array of insightful questions and I think I did my best to describe life as a person with MS.
On Friday, I was invited back to watch the first day of filming. My book was to be one of the props, so I gave them a copy, where it was placed in a prominent position. My book on film – fame at last! The scene I was to watch was taking place in a support group, with a circle of chairs, Joseph already sitting down and being joined by the therapist, a lovely actor called Jonathan Nyati ( to whom I gave some handy DIY advice).
I had lunch with Joseph in a beautiful sunlit garden (OK, so there were several other people around the bench) and then it was back to work. I wandered around, fascinated to watch Lesley Sharp re-do a scene over and over, where she walked through a door and along a corridor with an unmistakable MS walk. My eyes brimmed with tears; she had nailed it.
The sheer volume of people involved in filming was eye-opening – I counted at least twenty. During takes we had to be completely silent, so of course I dropped my bag with a huge thud by accident. Not my finest moment.
Halfway through the day, I heard my name being called from the other room. The producer was asking me if I wanted to be in the film. Huh? I walked in a daze towards her and she told me I was to be an extra (Woman in the Support Group), entering the room shortly after Jonathan, where Joseph was already sitting. I would then greet them both and take a seat.
Reader. I frantically worked it out. If I said no, I would regret it for ever. If I said yes, I would regret it for a short while. I said yes. I was given a cue, sent out the room and had to count two seconds before turning the door handle and walking in. Well, I did it. About six times (I think they were desperately trying to find my best angle). Where was Spanx when I needed it?
When I had finished, and stopped trembling, I felt brilliant. I had done it. And not only that, I was part of a project which will hopefully increase awareness of MS and the effects it can have. Before we left, I had a great chat with Lesley and Joseph, both of them impressing upon me just how important they thought this project was.
I floated back to Paddington, wondering if I had made the whole thing up. I’ll even have two credits on the film – script advisor and (fat) Woman in the Support Group, aka, Stumbling In Flats playing herself. Do you think I can apply for an Equity card?
p.s. I must point out, the camera puts on three stone …
p.p.s. I must lose said three stone before the premiere …
I’m so pleased, I get your posts and an MS Group I am a member of was e-mailed about this project and my thought was with your writing and energy you would be great for this so I replied to them suggesting you, I’m so glad it went so well. Cheers Ian.
Thank you so much!! I’d heard that my blog was recommended but I didn’t know by who (whom?). So kind of you – it was a once in a lifetime experience.
X
Great! You are most officially our MS starambassador now!
🙂
Aw, that’s lovely, thank you!
x!
WONDERFUL!!!!!! CONGRATS!!!!
Thank you! Am still floating just thinking about it 🙂
x
That was so cool ?, let us no when it’s on the box. Well deserved.
Will do, thank you!
x
Big Big Congratulations!!!
Can I have your autograph please?
Lol!!!!! Thank you 🙂
x
Great! I’ll look forward to seeing the film.
Thank you 🙂
x
WOW, I am sooo jealous. It sounds like a little bit of fame has found you (at long last)
Lol! Mind you, got a bit of a big head when they asked me to sign my book 😉
x
Well done you.
Thank you 🙂
x
Was it a case of no.. no.. no.. YES!
BRING IT ON
Jonny
Pretty much! I was stunned to be asked and kind of got swept up in it!
x