Tag Archives: MS Life

MS Life – Go!

ms lifeI went to MS Life in 2012, shortly before I was diagnosed.

It was the best thing I ever did.

I was full of trepidation before I went, but it was well worth the journey from Cardiff to Manchester.

This year it’s in London and I urge you to attend if you haven’t been to one before.

I was lucky enough to speak in-depth with a wonderful MS nurse, who guided me through the McDondald Criteria, my symptoms and  my options. She answered all my questions and made me feel empowered, which was fantastic as I was due to have a meeting with my neurologist soon after.

With what we had spoken about, I felt a lot calmer for the neuro meeting in which I was subsequently diagnosed and DMT’s were brought up.

And that’s what it is all about – information.

I’m that kind of person, if I know what I’m up against, I’d like as much information as possible. I’m a ‘cover-all-bases’ peep.

Anyway, back to MS Life – a celebration of MS in all its guises. I collected my bag full of – information – and gathered even more information from various stalls (check out the MS Trust stand – it’s superb) before heading back to my hotel room and reading every single thing.

Knowledge is power. Everyone I met at the event was friendly, enthusiastic and helpful. No question was too small or seemingly insignificant.

I’d love to attend this year but sadly my finances are limited, however I’ll be keeping up to date with all the talks and events.

Please go, if you can. And if you do, could you snaffle me one of the bags you get when you register?

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MS Society To The Rescue…

downloadMy last post about how hard it is to describe MS to other people struck a chord with lots of you and a huge thanks to everyone who retweeted it and posted it on Facebook.

Well, those lovely peeps at the MS Society have just given their introductory guide to MS a makeover. The guide – What is MS? – is for anyone interested in the condition and can be useful to give to your friends, family and colleagues. (click here to have a look at it)

It’s still going to be hard to describe what MS is like, but this is a great starting point. This compact edition has only seven sections, compared to 14 in the last one:

  • What is MS?
  • What causes MS?
  • What are the symptoms of MS?
  • How is MS diagnosed?
  • Are there different types of MS?
  • Can MS be treated?
  • How can the MS Society help?

Feedback on the previous edition now means that the booklet is A5 rather than A4, has a photographic cover to make it more visually appealing and the amount of text has been reduced. There’s also lots more graphics so the information is easier to read and take in.

This new guide is a lot more upbeat and fresh (even The Teenager gave it a thumbs up). Have a read, download it and hand out to everyone you know. The MS Society is always on the ball with information and leaflets covering every aspect of life with MS. I’ve got a whole bunch of them at home that I picked up at last year’s MS Life in Manchester. So spread the word – knowledge is power.

p.s. MS Life 2014 will be 26th – 27th April. Click HERE for more details.

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