Appealing for sanity?


I have now, at the last minute, submitted my appeal to Her Majesty’s Courts.

Stuff just got serious.

I got turned down at the Mandatory Reconsideration stage, due in large part to some person coming to my house and writing fiction/ticking off a list about me.

There were lies and then there were the downright lies. It’s one thing to assess my MS in less than 40 minutes (which is bizarre and actually completely impossible), it was another thing to doubt my witness.

So we are both wrong. And probably lying. As it happens, I am going through a particularly difficult MS flare up – not new, happens every couple of months or so (as reported).

Redial back, and after my Mandatory Reconsideration notice, I was willing (if I had the energy) to throw in the towel.

They didn’t believe me.

I had Alemtuzumab treatment, the strongest licensed treatment, at present, for MS. Three times, when we usually have two and that’s enough.

Each course costs at least £30,000.

I have a rapidly-evolving type of MS, hence the aggressive and brutal treatment. Basically, it removes your immune system. Easy?

Not really. Not at all.

And now, in amongst a further MRI to assess my MS, I am awaiting my day in court. And there was me thinking MS was brutal.

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6 thoughts on “Appealing for sanity?

  1. Sally says:

    Glad you are appealing.

  2. Jenny Hardy says:

    Soory that you are still struggling with this injustice. I hope it turns out well for you. Your blog is very inspiring.

  3. Annie says:

    Good on you. Not an easy decision I know. Not sure if I’ll be as brave if and when time comes! it really is such an injustice😡 when I see your ms description written down it just beggars belief that you are having to appeal.. hope it’s not too long a wait🙏🏼
    On another note… this heat is totally crazy 😅.. an all time high in N.I. We are not good at functioning in it lol 😂

    • stumbling in flats says:

      It’s horrible here 🙁 I mean, it looks nice from my window but absolutely brutal when I’m out in the heat. Work has been really hard, but luckily boss doesn’t mind me taking lots of cool breaks! X

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