Some people told me in no uncertain terms, ‘Oi, you, stop joking about MS, how dare you? And are you not grateful/bowing down/prostrating yourself for all those who are fighting on your behalf, and if you aren’t, why the hell not?
Sadly, most of these comments were sent to me privately so I’m unable to share them with you.
I have never, ever joked about anybody fighting to find a cure for MS. They are all amazing people doing an incredible job. The only exception is fundraising by fire-walking. Personally, I still find it awfully strange when one of the most common symptoms of MS is heat intolerance. It just seems kind of…..bizarre?
When MS decided to strike for a second time in our family, I cried, ranted and raved and eventually picked myself back up again. I will be forever grateful for advances in medicine which allowed me to choose Campath, a choice my dad never had back in the 1970s. He was simply sent home with a walking stick and told to get on with it. He died when I was four, and the precious few memories I have of him are fragmented.
Why do I joke about MS? I think we all know MS is serious. We live with it day in, day out. So what’s wrong with a little light relief? Also, I joke about myself and my symptoms, no one else’s. That just wouldn’t be funny. Frankie Boyle, please take note. I just don’t understand people who think I should live a serious life just because I have a serious illness. Or is this yet another example of ‘disabled’ people having to conform to a rigid set of societal expectations?
I’ve cried enough over MS for now. It’s here, life has changed and I’ve changed with it. Like a lot of you, I no longer take things for granted and my life is in much sharper perspective than before. MS is a daily reminder of the fragility of life.
So, yes, MS is crap. It’s awful. Regular readers of my blog will know I address this in serious and more lighthearted posts. And I hope my little blog can bring a smile or make someone think, ‘yup, me too.’