Well, this is fabulous. The energy levels are holding up and I feel on top of the world. A lot of my ongoing symptoms seem to be disappearing too, except for the numb left arm. But hey, I still have the other one.
The only drawback is that I woke up ultra early. Even the cat didn’t come downstairs for another hour, it was that early. After getting nothing done the day before, I whizzed through a couple of hours of work, put a load of laundry on, plumped up the sofa cushions, rearranged the food cupboards and watered the plants. At 7am I woke The Teenager with a cheery yell but judging by the grunts coming from under the duvet, he wasn’t feeling quite as awake as I was.
But the sun is shining and I looked back on my recent fatigue with a shudder. You don’t realise just how awful it is until it’s over. So tedious, so mind-numbingly boring and so depressing. I know this might not last though, so I am laying down plans for how to cope the next time the fatigue juggernaut rolls around:
The sofa becomes the centre of operation. Therefore it is vital to have everything within easy reach. It’s amazing just how much you can get done whilst lying down – emails, paperwork, phone calls, Twitter. Must make sure I have remote control to hand, that there’s a good stack of programmes on Sky Planner (nothing too taxing – Come Dine With Me, Escape to the Country and America’s Next Top Model), a couple of magazines and a generous supply of snacks.
With a bit of luck, you can also socialise from your sofa. Invite a friend over and casually suggest they swing by the takeaway. If you’ve got a teensy bit of energy but not enough to go out on a Friday night, have a friend over for a bottle of wine. Stay on the sofa, but prop yourself up (you don’t want to seem rude). When they leave, just slide back down and resume resting position.
Simples.
You can’t beat a nest of tables, have them next to your sofa and it can look like mission control at NASA 🙂 x
Hi Tony!
That made me laugh – it’s definitely like a command centre, isn’t it??? You can control pretty much everything from the comfort of your sofa, lol.
x
This is a general comment on your blog, although am delighted that you’ve got that zest for life back. Long may it last!
No, really just wanted to let you know that (IMHO):
1. You are so funny. I’ve actually hooted with laughter (yes, hooted. Guffawing (who invented that word?!) doesn’t even come close) at some of your entries and even on rereading (no I wasn’t high, courtesy of steroids), your writing is screamingly funny).
2. Being able to write so well that your reader’s engrossed in your ups and downs takes real skill. I can actually visualise your experiences at work. Ever considered a series of short stories/blockbuster/serious writing?
3. You’re also amazing. Juggling a new, unexpected life with a son and everything else takes real strength of character. Congratulations. Hope that your job hunt is successful. More importantly, that the drugs work and that you get better and better.
I can understand if you don’t want to publish this. But just hang on in there, you’re doing good!
Kind regards,
Honeysuckle
Hi Honeysuckle!
Wow – my head’s so big I can hardly get in the door. What an amazing comment – I have, ahem, actually made it into a blog post, lol. It’s so lovely to get feedback like that.
I would love to write ‘proper’ – see what happens. I adore writing the blog every day – I know I set myself a hard task, but I enjoy it – mostly!
Life is taking some strange turns at the moment, and it’s good to know there’s people out there rooting for me…..
Stumbling x
Glad to hear you’re still feeling good. It’s amazing how we plod on with daily life and suddenly one day we actually notice we feel “normal” (almost) for a change! It’s then we look back and realise how rubbish it can sometimes be. Enjoy yourself but don’t go too crazy – I use my good times to restock the freezer, just in case……
Hi Jenny!
If it’s one thing I’ve learnt, it’s that MS does what it feels like, lol. It’s dire, crap, but we just have to pick ourselves up I guess?
x