I’m Still Going…

Well, this is fabulous. The energy levels are holding up and I feel on top of the world. A lot of my ongoing symptoms seem to be disappearing too, except for the numb left arm. But hey, I still have the other one.

The only drawback is that I woke up ultra early. Even the cat didn’t come downstairs for another hour, it was that early. After getting nothing done the day before,  I whizzed through a couple of hours of work, put a load of laundry on, plumped up the sofa cushions, rearranged the food cupboards and watered the plants. At 7am I woke The Teenager with a cheery yell but judging by the grunts coming from under the duvet, he wasn’t feeling quite as awake as I was.

But the sun is shining and I looked back on my recent fatigue with a shudder. You don’t realise just how awful it is until it’s over. So tedious, so mind-numbingly boring and so depressing. I know this might not last though, so I am laying down plans for how to cope the next time the fatigue juggernaut rolls around:

The sofa becomes the centre of operation. Therefore it is vital to have everything within easy reach. It’s amazing just how much you can get done whilst lying down – emails, paperwork, phone calls, Twitter. Must make sure I have remote control to hand, that there’s a good stack of programmes on Sky Planner (nothing too taxing – Come Dine With Me, Escape to the Country and America’s Next Top Model), a couple of magazines and a generous supply of snacks.

With a bit of luck, you can also socialise from your sofa. Invite a friend over and casually suggest they swing by the takeaway. If you’ve got a teensy bit of energy but not enough to go out on a Friday night,  have a friend over for a bottle of wine. Stay on the sofa, but prop yourself up (you don’t want to seem rude). When they leave, just slide back down and resume resting position.


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6 thoughts on “I’m Still Going…

  1. Tony Cardis says:

    You can’t beat a nest of tables, have them next to your sofa and it can look like mission control at NASA 🙂 x

    • stumbling in flats says:

      Hi Tony!
      That made me laugh – it’s definitely like a command centre, isn’t it??? You can control pretty much everything from the comfort of your sofa, lol.

  2. Honeysuckle says:

    This is a general comment on your blog, although am delighted that you’ve got that zest for life back. Long may it last!

    No, really just wanted to let you know that (IMHO):

    1. You are so funny. I’ve actually hooted with laughter (yes, hooted. Guffawing (who invented that word?!) doesn’t even come close) at some of your entries and even on rereading (no I wasn’t high, courtesy of steroids), your writing is screamingly funny).

    2. Being able to write so well that your reader’s engrossed in your ups and downs takes real skill. I can actually visualise your experiences at work. Ever considered a series of short stories/blockbuster/serious writing?

    3. You’re also amazing. Juggling a new, unexpected life with a son and everything else takes real strength of character. Congratulations. Hope that your job hunt is successful. More importantly, that the drugs work and that you get better and better.

    I can understand if you don’t want to publish this. But just hang on in there, you’re doing good!

    Kind regards,

    • stumbling in flats says:

      Hi Honeysuckle!

      Wow – my head’s so big I can hardly get in the door. What an amazing comment – I have, ahem, actually made it into a blog post, lol. It’s so lovely to get feedback like that.
      I would love to write ‘proper’ – see what happens. I adore writing the blog every day – I know I set myself a hard task, but I enjoy it – mostly!
      Life is taking some strange turns at the moment, and it’s good to know there’s people out there rooting for me…..
      Stumbling x

  3. Jenny says:

    Glad to hear you’re still feeling good. It’s amazing how we plod on with daily life and suddenly one day we actually notice we feel “normal” (almost) for a change! It’s then we look back and realise how rubbish it can sometimes be. Enjoy yourself but don’t go too crazy – I use my good times to restock the freezer, just in case……

    • stumbling in flats says:

      Hi Jenny!
      If it’s one thing I’ve learnt, it’s that MS does what it feels like, lol. It’s dire, crap, but we just have to pick ourselves up I guess?

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