Back In The Saddle …

nuggetThe Teenager is back from his last ever school trip, a half-term jaunt to Washington.

Luckily for him, it coincided with my horrendous cold/semi-flu/downright miserable symptoms, so he got away lightly.

After six days of peace and a strange sense of calm at home, he arrived back on Thursday.

Long story short, they really should tear up the alphabet and name the next big hurricane after him – Hurricane Christopher, Extra Strength.

Chaos reigned once more, the bathroom sink was quickly defiled by toothpaste stains, the laundry basket was protesting. The fridge was stripped bare and The Teenager stalked our tiny cottage, bewailing a dire lack of protein.

Life was back to normal.

A couple of days have now passed and it’s like riding a bike – I’m once more used to the texts he sends, despite us being 7 or so metres apart:

‘Hellloooooooo moooommmmaaaa – beans on toast with extra cheese, ta. Love you. xx.’

‘Can I have a tenner for tomorrow? All my friends do. Party.’

‘How many chicken nuggets are in the freezer?’

From my Sofa Command Centre, I fire back replies:

‘Oh, really?’

‘Maybe.’

‘None.’

Come stand-off, he normally treads downstairs and ruffles my hair in a semi-ironic fashion and calls me ‘Mom’ in a fake American accent. It usually works.

In the meantime, I have been feeling very sorry for myself, laying semi-comatose on my sofa. My head has been hammering and I’ve felt like, well … ill. I hate it.

I’ve had to take six whole days off work and have been too ill to even watch Jeremy Kyle, a sure sign that I really am … ill. If I had the energy, I would kick myself. And pop out to buy some Wotsits and Aero Bubbles.

My dissertation is wobbling around my subconsciousness and I know I’m in trouble when I have to thesaurus the word, ‘however’. With the deadline looming, I’m panicking.

All the best writers wobble? And if you’re not the best, you wobble more?

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In My Friend, I Find A Second Self …

friendsTo  have friends is beautiful, magical and life-enhancing.

MS can obliterate that.

I lost a lot of my friends during my MS diagnosis, four years ago.

Whether they couldn’t cope with my new ‘diagnosis-status’, my angst, my late-night texts/phone-calls, I’m not sure. Probably a combination.

My best friend once took a ladder and crawled up the outside of my house and into my bedroom to check I was still breathing, as I lay over-emotional with red wine in my bed. To be fair, I would have done the same for him.  And I have done.

He was the one I called on the day of my diagnosis and we spent the evening lamenting and crying (mostly me) in a cosy gastro-pub. But also building plans for my future. Little did I know that in five months time, I would be unceremoniously sacked from my job. The reason?

MS.

I won the case, but lost immeasurable time with my son due to all the poisonous letters via the lawyer; time I will  never get back, so I used the paltry payout to take us to New York for five days, as a thank-you to The Teenager for all he had to put up with.

And now, now I am ‘living/thriving/succeeding with MS’, where are those friends now?

Luckily, I still have a close circle. I think.

Some have sloughed off along the way, and that’s to be expected. Do I demand more than I can deliver? Perhaps. How many times can I ask for a friend to visit me whilst I am ‘en sofa’?

It’s that boring, I bore myself, honestly.

Twice I’ve asked a dear friend to let me know dates he’s free for a get-together at mine and twice he’s brushed me off. Is my house so dusty? Pesky 300-year old cottages. Or is it deeper than that? Am I … embarrassing?

Twice I’ve asked the friend I’ve known since our kids ran out the classrooms clutching pumpkin masks. Pop in for coffee?

Nada.

I can only presume, on the balance of ‘worth a friend/not worth a friend’, I’ve lost.

I miss those friends.

I’ve had to take six days off work with a dreadful cold/almost-flu-but-not-quite, which weirdly coincided with The Teenager being away on a school trip. And really, it was all for the best. I schlepped around, lay on the sofa, felt sorry for myself and argued with the cat.

But I sure missed my friends …

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The Teenager Discovers Make-Up

halloweenThere has been much school-based concentration in our little house recently.

Not study notes or researching universities for next year. Nothing that simple.

Nope. There’s a school Hallowe-en party tonight and The Teenager has been fretting endlessly about his outfit:

‘Mum, mum, muuuum. I’m sooooo stressed.’

‘I know dear, this is one of those monumental years of your life.’

‘Like, durrrrr. Not that stuff, my costume for the party. What do I, like, go as?’

‘How about a conscientious student? I have books?’

‘Funnneeee.’

‘Zombie?’

‘Did that last year. Too much fake blood. Didn’t work.’

‘Ghost? I’ve got an old sheet. You only have to cut out two eye-holes.’

‘Then no-one gets to see my muscles, durrrr.’ Much eye-rolling.

‘I don’t know? You could go as a telly? I could make you a costume out of an old box?’

‘Muuuuum, it’s not like the old days. We have, you know, flat-screens now. I give up.’

And by that point, so had I, as I cast my mind back to when he was two years old, dressed up in the cutest pumpkin costume, complete with a little pumpkin-stalk hat.

This afternoon, after a tiring day at work, The Teenager pounced on me as soon as my key was in the lock.

‘I fed the cat, honest, and look‘ – he shoves his laptop towards me and a strange person is on the screen.

‘I’m going as an effel player. Genius!’

‘Let me just put my bag down. And, um, get in the door? Ta.’ Erm, effel? A new gaming character? Some Japanese warrior?

‘N. F. L. American football.’

I’m completely confused. Don’t they wear cage-like things over their heads and shoulders? I questioned him about this.

‘I’ll be kind of off-duty.’

‘Right. Jeans and a t-shirt then?’

Mum, I’ll wear my NFL t-shirt, black shorts, like, casual like, and carry an American football. But, I need you to do my make-up.’

I sit down with my bags.

‘Ok, show me.’

‘Two big stripes, see?’

‘So you’d have them when you’re off-duty?’

‘Muuuuuuuum. Honestly. One question, can you do them on my face? Without wibbly hands? Pleeeeaaase?’

‘Eye pencil. I’ve got loads I don’t use any more.’

‘Too right – those flicks you tried were, like, wonky.’

‘Don’t push your luck.’

He rummaged through my old make-up pencils, finally finding The One. This! Is perfect.’ He tried it on the back of his hand. ‘And a nice soft colour. I like it. Sorted. Have you got make-up remover for later?’

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Simply The Boss …

mugJust when I think my life is bad, The Boss proves me completely wrong.

Not only is he juggling three jobs at the moment, he is also without a van, his phone and his hair.

I’ll explain:

A few weeks ago he was in a crash at a notorious roundabout. Luckily no one was badly hurt and it wasn’t his fault (it was an 84-year old, on his way to his birthday party, poor thing).

Sadly, his beautifully sign-written van (designed by moi) is a write-off and was sent to the Crusher Yard last week – a day of sad reflection for us all.

So he hired an interim van after much grumbling about lack of shelf space and roof rack. Last week he had to sort out the plasterer at one of the jobs, left his phone on the dashboard for a minute (d’oh) and came back to find the van broken into, the phone gone and half his tools as well.

As if that wasn’t bad enough, after sporting a Donald Trump-esque haircut for a while, he went to a new hairdressers and came out with a razor-thin cut, looking like someone I saw recently on Crimewatch.

And finally, to top it all, he’s had to put up with me going through an MS floaty-exacerbation-of-symptoms.

I worry about him.

At work today, I tripped over countless times. I took ten minutes to doze in the corner. All the while, he was on my phone, sorting out a new van, chasing up his new phone and working out which tools have been taken. He collects them as a hobby so this in itself was a monumental task.

Anyway, as I was packing up to leave, he said he’d worked out a plan for the week and ran through it for me. I gently reminded him I was having a blood test on Wednesday and seeing my neurologist on Friday, so wouldn’t be in work those days.

I left pretty sharpish.

As I got in my car, The Teenager sent me a text, ‘Sixth form party tonight, can you iron my jeans? Can I have some money?’

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The People You Love …

ghostsThe Teenager went to Manchester at the weekend to visit a close relative who is severely ill with Parkinson’s and now living in a nursing home.

I picked him up from the train station yesterday evening and could clearly see the slump in his shoulders, his troubled face.

On the drive home, we chatted about this and that but he was mostly occupied with his phone and glugging back the drink I had brought with me.

Until, ‘Mum? Can I ask you something?’

‘Of course!’

‘Will, um, do you think, well, you could ever get like that? You know, with MS?’

I took a deep breath. ‘I really don’t think so, sweets. Look at the treatment I’ve had! It was hard this weekend?’

‘Uh huh. It was really nice to see him, but really sad. I’m scared you’ll be like that when I’m older.’

‘C’mon kiddo, you know how tough I am. Tough as a toffee!’

‘So was he.’

‘Oh, I know sweets. A really strong person and what happened to him is just awful. But he’s been ill a really long time.’

‘I’d look after you, you know.’

‘That’s so lovely of you, thank you. But you know what the most important thing is? That you get on with your life. Everything is opening up for you. I’m doing just fine, sweets. I’m working, I’ve got Uni, everything’s great. You know I don’t need to ask you for help with anything. I like looking after you.’

‘Yeah, I know, but sometimes I wish you would ask me. I feel really helpless when you’re tired or your legs are sore. I’d like to make you a cup of coffee or a glass of squash. Or something.’

My heart broke into a thousand pieces.

‘Ok, let’s make a deal. Next time I’m really, really tired and have to go to sleep in the afternoon, you can wake me up after an hour with a cup of coffee? That would help me a lot.’

‘Deal.’

After growing up with ill parents, I’ve always been determined never to turn my son into some sort of carer. The thought horrifies me. But have I gone too far the other way? Am I somehow blocking him out?

And not only this fear, but also a dear friend of his, one of his close group of friends from school, passed away from cancer on Saturday. He was 17. The Teenager is struggling with appalling grief from both ends of the spectrum, at the beginning of life, and towards the end.

It is even more vital now, that I support him. But how best to do this when his thoughts are clouded by my MS?

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