Regrets? I’ve Had A Few…

stonesI have a 90 year old friend, Tom, who’s in poor health. Yesterday, over a cup of tea, he took my hand and said, ‘Don’t end up like this. Don’t get to my age and have regrets. I know you’ve got MS, but get yourself out there.’

I asked him what he regretted, what did he wish he had done differently? He thought for a moment before saying he would have worked less, been happier and kept nothing  for ‘best’.

I went home deep in thought. On the internet, I found an excellent blog, Inspiration and Chai, written by a palliative nurse, Bronnie Ware, who cared for patients in the last 12 weeks of their lives. Her observations have been collated in a book, ‘The Top Five Regrets of the Dying.’

I expected to be depressed after reading them, but instead I felt motivated to keep on improving my life and learn from the wisdom of others who have gone before. The five most common regrets are:

  1. I wish I’d had the courage to live a life true to myself, not the life others expected of me.
  2. I wish I hadn’t worked so hard.
  3. I wish I’d had the courage to express my feelings.
  4. I wish I ‘d stayed in touch with my friends.
  5. I wish that I had let myself be happier.

The last point for me was the most interesting. Bronnie Ware writes that many people did not realise until the end that happiness is a choice. They had stayed in old patterns and habits and the fear of change had them pretending to others, and themselves, that they were happy.

I want to live a fulfilled life. I have enough regrets already, so maybe I should just choose to be happier. Chase the dreams, make mistakes and pick myself back up again. At least I can say I tried. Having MS  has brought clarity and a sharp focus to my life. So, thank you, Tom, for giving me a much-needed push in the right direction.

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Beat The Heat…

ID-10019970My guest blogger today is Katie Brind’Amour. She is a Certified Health Education Specialist and freelance health and wellness writer based in America, and loves learning about natural ways to live well. She enjoys writing for Healthline.com and WomensHealthcareTopics.com:

Perhaps it’s wishful Spring thinking, or perhaps it’s the knowledge that year after year it does eventually get warmer, that makes me turn to thoughts of sun and heat. When fighting MS, however, warm weather is not all good news.

Most people with MS have something in common: myelin sheath that has taken a permanent vacation. This means your nerves are extra sensitive to temperature changes, and flare-ups can happen.

Dealing with MS When It’s HOT (or if you’re in the UK….’a tad warm’)

  1. Make the air conditioner your best friend. Hang out together all the time—whether it’s at your house or the local grocery store, mall, or movie theater. Becoming best mates means lots of quality time in a cool, comfortable climate (and less quality time feeling the burn!).
  2. Invest in ice packs. These frozen heroes can be frozen overnight and taken with you for a day trip, picnic, or even a hot car ride (if your car can’t handle your air conditioner best friend). They are super cheap and stay cold for many hours—wrap them in a towel for long-lasting cold presses. Otherwise, be old-fashioned and just run a washcloth under water to use to cool your skin during walks or outdoor time.
  3. Be cool: use water. This means drink it (cold!), swim in it, and bathe in it wisely. Add ice to beverages to keep your core a bit cooler, enjoy a cool pool for exercise, and take a cool bath. Hot water only tends to aggravate MS symptoms. Although you can sub out other cold liquids for the drinking bit, substituting other liquids for swimming and bathing may not be quite as feasible…
  4. Protect that body! Be smart about your exposure to sun and heat. This goes for clothing (dress lightly and protect your skin from sunburn) as well as for finding shade. Short of investing in one of those giant retractable awnings they show on TV, you might try finding a shady park for morning walks or wearing a super fashionable baseball cap.

Just remember: to beat the heat troubles of MS, it doesn’t take pure genius, just common sense. Enjoy the coming warm breezes with a totally chillaxed mind (and body—MS or no!).

p.s. the totally gratuitous image of a lovely young man cooling down was taken by Graur Razvan Ionut and is available free (the image, not the man) at http://www.freedigitalphotos.net/images/agree-terms.php?id=10019970

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You’re Having a Laugh…

Krispy Kreme CybermanIf you had met me just before I started this blog, you would probably never pick up the phone to me again or at the very least, you would raise an eyebrow at me pouring yet another glass of wine, sniveling and whining, ‘S’not fair, s’not fair, my life is over. Over, I tell you.’

I read an article recently about the difference between self-pity and self-care with grim recognition. When the whole MS saga began, I sought endless validation for all my negative, soul-destroying emotions, handing over responsibility for my pain to anyone who was willing to take it on. I was having a continuous pity party and everyone was invited.

Sympathy confirmed just how awful my situation was and I was free to carry on regardless. I spent long evenings trapped in dark thoughts, envisioning a bleak future, if I had a future at all.

What changed? I was hurtling downwards to the point of no return. I was alienating those closest to me. My situation might never change, but I could. I was utterly fed up and frightened of being a helpless victim of fate and decided to take back the reins of my life.

The friends who stuck by me through that period are the ones who poked fun at me – it was what I needed. The intention was never to undermine the seriousness of MS, just putting it into perspective. The symptoms weren’t going anywhere, so let’s have a bit of a laugh about it. The dodgy hands, the wonky feet, the complete inability to remember simple words.

I wanted to turn the whole thing on its head. Yes, MS is awful. Yes, it’s serious. And if you want to, you can live your life that way. Sure, I still have moments (days) of utter terror but I wanted to be in control of them so I started this blog to work out my feelings, to show there has to be a lighter side to MS, bizarre though that may seem.

So just like the Cyberman in my picture, the most terrifying things can be funny and no matter how dark the shadows, the light that shines nearby is even stronger.

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Getting On My Nerves…

special offerIt’s been a stressful week and stress plus MS equals a spike in symptoms.

I have tried everything to stay serene and in control – deep breathing, chocolate, mindfulness, two episodes of Mad Men.

The deep breathing made me feel a bit silly, the chocolate nudged the scales up,  The ‘Power of Now’ was the ‘Power of Not-Right-Now’ and as for Mad Men, well, two episodes are never enough.

For me, it’s mostly an increase in nerve pain. Ever tried describing nerve pain to the uninitiated? Burning, tingling, numbness, crawling, aching doesn’t even begin to cover it.

Tingling sounds delightful, numbness sounds painless, crawling sounds weird and we all ache, don’t we? Just like we all get tired.

It’s been driving me round the twist all week and as always with MS, it doesn’t come alone. It’s the great MS special offer – ‘get one symptom, get three free’. So, as well as the nerve pain, there’s the fatigue, the wonkier walking, the hands that’d be better suited to a Greek taverna. Smashed plates? Yup, as well as my last proper grown up wine glass and yet another chip in yet another bowl.

I lay awake most of last night listening to Izzy miaow loudly. For a tiny cat, she’s got a huge set of lungs. The Teenager got up and shut his door and I was left to ponder the cobwebs on the ceiling and listen to a group of drunk woman sing ‘Simply The Best’ outside my window at 1.30 am. The pain was excruciating and made even more unbearable as my legs started to jerk and twitch.

I wasn’t sure if it was like being possessed by a malevolent spirit (The Exorcist sprang to mind in the wee small hours) or being stretched on a rack. Only problem was, I couldn’t get up and go downstairs as new cat Izzy would think it was perfectly normal to sit in the kitchen listening to the shipping forecast before sunrise. I was trapped and the women outside moved on to a Tom Jones medley, a tortuous backdrop to insane pain.

Action plan for the weekend – rescue ‘The Power of Now’ book from the corner I flung it in to, lie on the sofa with a huge bag of crisps and a relaxing face-pack on and chant, ‘this too shall pass’ over and over and over again…

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Adorable Dora

Dora the bonkers catThe Teenager and I had a very long chat the other night and we decided to adopt another cat as soon as possible, so I went to Cats Protection yesterday.

He wanted to call the new cat ‘Dog’ or ‘Jam’. At a push, ‘Enchilada’. Hmm. This is the same kid who named my mum’s cat Yoda eight years ago.

Anyway, at the centre there were four long rows of the cutest, saddest cats. Heartbreaking. Half of them were clambering behind the glass, the other half hiding or sitting with their backs turned.

Some of them had sad histories. One had been kicked so badly in the stomach that she had to have an operation. One had lost an eye. Many had been abandoned and some were handed over by owners who could no longer afford to keep them, due to the recession.

I looked around. So many cats, but one stood out. Dora. A dinky little all-black female. Five years old, with a bonkers glint in her eye and I took to her straight away.

Back at reception I handed over my ID, my bank card and my details. I filled in numerous forms, read the small print, promised to take her for her second injection and swore allegiance to Cats Protection. I joked that there was less paperwork when I took my son home from hospital after he was born but that didn’t go down so well.

Dora came through in her basket and we whisked her off to the car. Back home, she has settled in incredibly quickly. When The Teenager came home from school, she jumped straight onto his lap. It feels as if she has been her forever.

Dora could never replace Bubble. She’s her own little character. She seems slightly crazy, but I like that. Having a crazy cat in a crazy world is no bad thing.

p.s. Dora just would not stay still for a second to let me take a proper photo – think she was high on catnip. And we’re going to call her Isadora…

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